RE: Subject: Restless Legs Syndrome

Follow-Up posted by M. L. Jennings (mlnfd@bendnet.com) on 18:9:19 9/5/97

Follow-Up: Carla and Patty - just read with interest your email on RLS. I've had it for 32 years, since the birth of our first child. Mine is not painful at all just a sensation that I have to move or kick. I have tried hot baths, walking, rubbing (which my poor husband does nightly), quinine, Q-Vel, calcium, Vitamin E, valium, Robaxisal (which sort of helped but not entirely) and numerous other things (chiropractic, acupuncture, neurologist etc.). Anyway, My assistant is Vicodin - it is a narcotic and my doctors don't like me on it. But - in 1983 I had my gallbladder reomoved. They gave me Vicodin for pain in the hospital. I noticed I didn't get restless legs for those two weeks. So I asked my current doctor if I could try it for awhile longer. He told me, in no uncertain terms, that he didn't like it and we'd experiment. If I got over 3 tablets a day, I was to let him know immediately and we'd try something else. Well it has been almost 14 years and I'm still on 3 tabs a day. I usually take one at noon, one at 6-7 p.m., and then again when I go to bed (usually 11-12). If I feel the RLS coming on sooner I will take a pill then. Otherwise, it usually keeps it in check on my regime. I know Vicodin is a narcotic and it has noted side effects, but it relieves my exasperation of being up all night walking and being absolutely miserable. At one point a doctor thought it might be a form of epilepsy and I tried all of the drugs known for that - they just made me sick and didn't do anything for the RLS. The other doctors have been in agreement that it is neurological. Most drs don't have a clue WHAT it is. I've had two physicians that have "read" and searched the medical books and we've tried soooooo many things - none have worked. I'm 60 years old, white female - about 12 pounds overweight which is probably not good for the RLS - but fairly active. We've just retired to Oregon and started doing a bit of hiking and walking in the neighborhood. Hiking sometimes makes the RLS worse. A hot bath truly helps but it won't kill it unless I've had the Vicodin. I'm going to take printouts of some of these suggestions I've found on the net to my rheumologist who is quite hep on RLS - and see what he says about Kava etc. If you learn anymore PLEASE let me know. Thanks. M. L. Jennings (I just use initials, don't like my first name).


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