Follow-Up: I hope some of you are still out there all of the dates seem to be a yr or so old. My Dr. is a narcolepsy expert and insists that I can't be having the progressive synptoms I am because "narcolepsy" isn't progressive. He did diagnose me with IH via 4 sleep studies but can't seem to approach it differently than narcolepsy. Has any one else had this problem. I've been treated for it for about 15 yrs although there were sighns of it even in childhood.